Enjoy this little slice of our daily lives!
Samuel's closet with clothes, supplies, toys, pillows etc.
We are the Judsons and we live in Kansas. Jim is a Pastor, Kira is Mom and Seamstress, we have four sons. Nathan, David, Samuel, Zane and a daughter, Claire!
SMA (spinal muscular atrophy) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants.
SMA affects approximately 1 in 10,000 babies, and about 1 in every 50 Americans is a genetic carrier. SMA can affect any race or gender.
(facts borrowed from curesma.org)
SMA is caused by a mutation in the survival motor neuron gene 1 (SMN1). In a healthy person, this gene produces a protein that is critical to the function of the nerves that control our muscles. Without it, those nerve cells cannot properly function and eventually die, leading to debilitating and often fatal muscle weakness.
Test your baby
Support a child with SMA
Please contact us for more ideas.
If you or your child have been diagnosed with SMA of any type, there is HOPE. We would be happy to help you in any way we can. Please send us an email.
You have questions, we have answers!
It's ok to ask, we want people to learn about SMA, and get a better idea of what our daily life is like. Please send us an email!
Your support will help us to provide for Samuel's uncovered medical and assistive device needs.